The other response we get, a lot, is that all autistic people experience demand avoidance and therefore PDA does not require it's own diagnosis. I hear this a lot and from autistic advocates, professionals, commissioning groups and autistic people. It is a fundamental misunderstanding of PDA.
This one is particularly common if the child is already identified as having Attention Deficit Hyperactivity Disorder (ADHD) or as being on the Autism Spectrum (ASC). When parents research further, or end up in an ADHD or ASC group on Facebook, they are likely to come across mention of PDA and this is when their brains can potentially explode.
Why are there so many letters? What in the hell is the difference between being oppositional and being demand avoidant? Is one worse than the other? The PDA description sounds just like my child but they aren't autistic, are they, wait, are they?
I get it, I have been right there...
As an adult, newly identified as PDA, with probably at least two PDA children.
didn’t, what would be the point of writing it. It may not fall in line with the understanding of professionals or of other PDAers. That is fine with me, but I stand ready to be given new information and change my view.
I hope this is helpful. I also secretly hope that the amazing people I have come to respect in the PDA community find this represents PDA correctly. If you want to read the standard description of PDA, or you want to find other people who have talked about it more than I have, understood it longer or are clinical professionals in this area, please scroll to the bottom for all the links.